Specialist Physiotherapy for Ehlers-Danlos Syndrome (EDS)
Living with Ehlers-Danlos Syndrome (EDS) can affect many aspects of daily life, including pelvic health. Joint hypermobility, connective tissue differences and muscle weakness can contribute to symptoms such as pelvic pain, bladder and bowel dysfunction, prolapse, and difficulties during or after pregnancy.
At The Pelvic Health Studio in Marylebone, we provide specialist physiotherapy for people living with EDS, helping you better understand your symptoms and supporting you with personalised treatment designed around your body’s unique needs.
Every person with EDS experiences different challenges. Our approach focuses on improving stability, movement, muscle function and confidence while recognising the importance of pacing and long-term management.
What Ehlers-Danlos Syndrome (EDS) Is
Ehlers-Danlos Syndrome (EDS) is a group of inherited connective tissue disorders that affect the body’s collagen. Because connective tissue provides support throughout the body, EDS can impact joints, muscles, ligaments, skin and internal organs.
Many people with EDS experience joint hypermobility, reduced joint stability and increased muscle fatigue. These changes can place additional demands on the pelvic floor and core muscles, contributing to a range of pelvic health symptoms.
Physiotherapy aims to improve muscular support, movement patterns and function while helping you manage symptoms safely and effectively.
Who This Condition Affects
EDS affects people of all ages and genders, although symptoms often become more noticeable during periods of physical change such as pregnancy, after childbirth or during increased physical activity.
You may benefit from specialist pelvic health physiotherapy if you:
- Have been diagnosed with Ehlers-Danlos Syndrome or Hypermobility Spectrum Disorder (HSD)
- Experience pelvic pain or instability
- Have bladder or bowel symptoms
- Notice symptoms of pelvic organ prolapse
- Are pregnant or recovering after childbirth
- Experience persistent core weakness or reduced stability
- Find that daily activities are limited by pain, fatigue or pelvic symptoms
Because symptoms can vary considerably, assessment and treatment are always tailored to your individual presentation.
Common Symptoms and Conditions
At our Marylebone clinic, we commonly support patients with EDS who experience:
- Urinary urgency, frequency or leakage
- Bladder pain or overactive bladder symptoms
- Constipation or bowel dysfunction
- Pelvic organ prolapse
- Persistent pelvic girdle pain
- Pelvic floor muscle overactivity or weakness
- Pain during sexual intercourse
- Pregnancy-related pelvic symptoms
- Postnatal recovery following childbirth
- Core weakness and reduced trunk stability
Many people experience a combination of symptoms, which often benefit from a comprehensive pelvic health assessment.
What Happens During Your Appointment
Your first appointment is designed to give you a thorough understanding of how EDS may be contributing to your symptoms.
We begin with a detailed discussion about your medical history, hypermobility, current symptoms and daily activities. This is followed by a physical assessment, which may include:
- Postural and movement assessment
- Breathing, core and abdominal muscle assessment
- Joint stability and movement analysis
- Pelvic floor assessment where appropriate and with your consent
- Assessment of muscle coordination and functional movement
Your physiotherapist will explain every stage of the assessment clearly, and you remain in control throughout your appointment.
Following the assessment, you will receive an individualised treatment plan tailored to your symptoms, goals and lifestyle.
Benefits of Treatment
Physiotherapy can play an important role in managing the pelvic health symptoms associated with EDS.
Treatment may help you:
- Improve pelvic floor function
- Increase core stability and muscular support
- Reduce pelvic pain
- Improve bladder and bowel control
- Support prolapse management
- Improve confidence with movement and exercise
- Reduce the risk of symptom flare-ups through pacing and education
- Improve overall quality of life
Treatment focuses on building long-term strategies that work with your body rather than against it.
Why Choose The Pelvic Health Studio
The Pelvic Health Studio in Marylebone provides specialist physiotherapy for complex pelvic health conditions, including Ehlers-Danlos Syndrome.
Patients choose us because:
- We have specialist expertise in pelvic health physiotherapy
- We understand the unique challenges associated with hypermobility and connective tissue disorders
- Assessments are comprehensive and personalised
- Treatment plans are tailored to your symptoms and goals
- We provide compassionate, evidence-informed care in a calm and supportive environment
- We work with you to develop realistic, sustainable strategies for long-term symptom management
Recovery and Results
EDS is a lifelong condition, but many people experience significant improvements in their symptoms, confidence and function with the right physiotherapy support.
Recovery looks different for everyone and depends on factors such as your symptoms, activity levels and overall health. Rather than focusing on a cure, treatment aims to help you improve stability, reduce symptoms, manage flare-ups and maintain the activities that matter most to you.
Your physiotherapist will guide you through a personalised rehabilitation programme, adapting treatment as your needs change and helping you build confidence over time.